First Week of Life

DAY 2

Written Feb 17, 2012 7:00pm by Hillary Sirmon

My big sis came to visit!

Benjamin remains in the NICU and is intubated.  At this point, we are not sure exactly what has caused all of this, but we are slowly and patiently waiting on tests to be run and their results.  He seems to be resting peacefully and is well taken care of.

Lennon came to visit Benajamin today and was sad she couldn’t take him home.  On the way out of the NICU, Lennon says, “Mom, I miss Benjamin.”  She is going to be a great big sister.

K.C. and I take turns spending time with Benjamin, since neither one of us want to leave him alone.  I know that tomorrow will be difficult since I am being discharged from the hospital, but we will be with him every moment we have.

Thanks so much for all of the calls, texts, prayers, and sweet messages.  We truly appreciate them.

DAY 3

Written Feb 18, 2012 6:52am by Hillary Sirmon

Benjamin had a great night last night.  His blood gases (shows lung function) are looking better this morning so we are very hopeful that his lungs are slowly starting to improve.  Benjamin was placed on his tummy for the first time last night, and he loved it.  His vitals not only remained stable, but improved slightly.  His pediatric physical therapist mommy was very excited 🙂

This morning, Benjamin was able to taste milk.  The first time we tried this, Benjamin did not respond; however, today he moved his mouth and tongue while I swabbed his mouth.

I am being discharged today, but we will definitely be staying around to keep Benjamin company.  It is a very weird feeling knowing that when I leave, our “Little Buddy” won’t be coming home with us, but we know he is in great hands.

A Change in Scenery

Written Feb 18, 2012 1:33pm by Hillary Sirmon

Benjamin moved to his own little area today. I am not sure if it is because he is to have minimal stimulation only or if we are driving everyone crazy being here all the time. 🙂 It is very dark, quiet, and peaceful (other than the bells and whistles of the monitors) and it is about the only place I feel comfortable enough to close my eyes for a second. We are still waiting on more doctors and more tests, but in the meantime Benjamin is slowly working on depending less on the vent.

Long Drive Home

Written Feb 18, 2012 6:57pm by Hillary Sirmon

Well, our drive home is pretty much what we expected…miserable. Just walking through the hospital we had entered only a few days ago so excited and eager was to say at the very least, difficult.On a positive note, when we left, Benjamin was resting comfortably on his back after tolerating multiple position changes today. They were able to decrease some of the vent settings slightly and he tolerated them much better today. His nurse also drew him a spaceship for his bed with his name that would match his room at home. Tomorrow the neurologist is coming to see Benjamin so hopefully we can start to get some answers.We are excited to see the girls since we miss them so much and we know they will lift our spirits. We look forward to the day we can all play together. We will just have to make sure Ben is ready for Isla. :)K.C. and I are truly blessed to have such a beautiful son and we can’t wait for everone to meet him when he comes home. Please keep Benjamin in your prayers.

Day 4

Written Feb 19, 2012 10:54am by Hillary Sirmon

Benjamin had a great night last night. His sweet nurse took some pictures of him for us holding an Immaculate Medal that was brought to him by wonderful friends. During rounds this morning, it was decided to lower some of the settings on the vent (yay!), start giving Benjamin a small amount of milk (hooray!), and to start some of the genetic tests while we wait for the geneticist. It was a little good news we really needed. They continue to be concerned that he is not moving as much as he should so we patiently wait for neurology.
Lennon and Isla came by today on their way to stay with Nana, Pawpaw, and Aunt DonDon. They were so excited and ready to go. I hope my family is ready for them. 🙂
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