On Hold

Benjamin had a great day yesterday. He started playing, smiling, and dancing again (he does an adorable shoulder shrug). It appeared as though he might be heading in the right direction until last night when Benjamin started with a low fever. The fever continued throughout the day. It is controlled temporarily with Tylenol, but then goes back up once the Tylenol wears off. When his fever is just slightly elevated, he becomes lethargic again and drifts back off to sleep.

Over the past 24 hours, the respiratory therapists have been able to wean his oxygen a bit. Tonight, however, Benjamin’s O2 sats are low and the oxygen had to be increased. We are waiting for cultures to return to see if they can find a reason for the new fever. If nothing comes up from the trach or blood cultures, they might “tap” the shunt to test for an infection. Our plans to move to the floor have been put on hold.


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