Rare Disease Day

Today, Benjamin received his first pair of big boy braces. What could be tougher than black braces with skulls and bones. 🙂

Tomorrow, we dress in blue and blue jean for Rare Disease Day. So too often, the rare diseases lack public attention and funding. They are so close to a treatment for Myotubular Myopathy, and only lack funding and time. Please donate to The Joshua Frase Foundation or Where There’s A Will There’s a Cure in honor of Rare Disease Day.




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